In honor of my little cousin, Cailyn, who was diagnosed with DIPG in Spring of 2012. This past week Cailyn lost her battle with with cancer and received her angel wings. She will be deeply missed by many~♥~She taught us all to smile no matter what life throws our way. Fly with the angels sweet Cailyn, we will see you again someday~♥~
A huge thank you to all that have been following her story and helped us raise funds for her trial study. In a quest for a cure, DIPG children must move from one experimental protocol to another enduring treatments with many side-effects which would be unacceptable with any other diagnosis. The cruelty of this disease cannot be denied. Sparing their cognitive abilities, DIPG slowly robs children of their motor functions resulting in partial paralysis, loss of voice and sight and finally ending with an inability to eat and breathe. It is both heart wrenching and painful as they are fully aware of their decline often until their last day. Although Cailyn lost her battle, her battle will never be in vain and we will never stop looking for a cure!
Funding for pediatric brain tumor research is critical since treatments discovered for adult brain tumors may not be appropriate for children. Pediatric cancer research has been important in understanding the basic biology of cancer, treating adults with cancer and providing principles of therapy and advances for other diseases of children and adults. For example, chemotherapy was first shown to be effective in curing children with cancer, yet chemotherapy and radiation are ineffective for children diagnosed with DIPG.
In recent years, the amount of funding for childhood cancer clinical research from the federal government has been declining. Please consider a donation to The Cure Starts Now Foundation in honor of Cailyn and her family, and every child that has ever been diagnosed DIPG. You can also donate to Cailyn's family directly through this email address: firstname.lastname@example.org